Esquimalt family spreading kindness and fighting for cure to rare disease that claimed daughter’s life

CHEK
Family photos are seen in the Townsin's home in Esquimalt.

For an Esquimalt family, the holiday season is filled with lots of happiness and grief. The Townsin family has been keeping their late daughter’s memory alive by trying to find a cure for the rare disease that took her life back in 2019.

Their three-year-old daughter, Lexi, had her life cut short when she was diagnosed with a rare disease called Blau Syndrome.

Lexi, at the time, was one of fewer than 200 patients in the world diagnosed with Blau Syndrome. It is a painful condition that affects joints, eyes, and internal organs.

SEE PREVIOUS:

Lexi’s mother, Cheryl-Lynn, says that the later months of the year are the hardest times for her and the family.

“The anniversary of Lexi’s passing was October and these are hard months between October and her birthday in December,” she said. “We were thinking this year that rather than focus on our tragic loss, we would focus on her ongoing presence.”

Through the family’s foundation, Townsin, along with her husband and her son, Felix, are trying to encourage people to spread kindness through their Facebook Social Media campaign.

“We’re going to try and put more love into the world and have it in Lexi’s name cause even though Lexi isn’t with us anymore we are trying to spread love,” said Felix.

She added that they are loving the support so far and they are hoping to reach over 1,000 people by Lexi’s birthday anniversary on Dec. 16.

Lexi Townsin is pictured.

 

Tchadas LeoTchadas Leo

Recent Stories

Send us your news tips and videos!