WATCH: Beloved Vancouver Island fundraiser Jeneece Edroff has a growing tumour and she wants the B.C. government to send her back to the United States for care. April Lawrence reports.
Jeneece Edroff has just been invited by B.C.’s Premier to meet the Duke and Duchess of Cambridge when they visit Victoria at the end of the month.
“My mom calls and tells me this and I’m just screaming on the phone with excitement,” said an elated Edroff Thursday.
It’s a bright spot in what has been an otherwise dark time for the 22-year-old fundraising phenom.
In fact, just a day before receiving the invitation Jeneece’s mother Angie wrote a letter to Christy Clark saying she’s fed up with the B.C. medical system.
“I think our system just isn’t capable of looking after her properly,” said Angie Edroff.
Back in March, Jeneece had to have a kidney removed.
The family says it failed while they were waiting to see a specialist to have it repaired — and that was just the beginning.
“As soon as that kidney came out, one of Jeneece’s other tumours started to grow,” said Angie.
Four and a half months later, and they’re still waiting for a referral to a proper doctor to have it checked out.
“The fear in my head is is this cancerous? Am I going to lose something else? Am I going to be able to leave the house?” asked a frightened Jeneece.
And now, making matters even worse, her family doctor is closing his practice.
It’s a series of major blows for the young woman who battles a rare genetic condition called neurofibromatosis, which causes tumours to form on nerve tissue.
“How many body parts does Jeneece have to lose before I say this is enough,” demanded Angie.
Jeneece has had some of her 26 surgeries performed at the Mayo Clinic in Minnesota.
They were pricey visits paid for by the B.C. government and public donations.
The family says the medical team there specializes in Jeneece’s condition, and there are no wait times, so they want to go back.
“I’m a mom and this is my baby, I will fight to get her to the Mayo Clinic at all costs,” said Angie.
But the generous young woman with the heart of gold isn’t asking for charity.
“We’re not a family who wants to keep asking the public for money,” said Jeneece, “because there’s other people out there that need it more than us.”
The Edroffs want the B.C. government to step up and do what’s best for Jeneece’s unique medical challenges, before it’s too late.
After CHEK News contacted the provincial government, a health ministry staff member reached out to the Edroff family to try to address some of their concerns, but so far the province isn’t committing to sending Jeneece back to the United States.